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Patients’ attitudes toward electronic health information exchange: qualitative study

By Steven Simon, J. Stewart Evans, Alison Benjamin, David Delano, David Bates
J Med Internet Res 2009 (Aug 06); 11(3):e30

ABSTRACT
Background: In many countries, there has been substantial progress in
establishing the electronic transmission of patients’ health information
between health care providers, but little is known about how best to engage
patients in the process.
Objective: We explored patients’ views about sharing of electronic health
information and their preferences for learning about and participating in this
process.
Methods: Patients in one Massachusetts community in the northeastern
United States were recruited to participate in focus-group discussions. Prior
to discussion, participants completed a written questionnaire that captured
their reactions to draft educational materials and a consent form. The
discussion moderator and two physicians analyzed the moderator’s detailed
notes from each session and participants’ written comments, using an
immersion-crystallization approach.
Results: Three dominant themes emerged: (1) concerns about privacy and
security, (2) the potential benefit to a person’s health, and (3) the desire for more
information about the consent process. On the pre-discussion questionnaire,
55 out of 62 participants (88%) indicated that they would provide consent for
their information to be shared electronically among their health care providers,
given the materials they had reviewed.
Conclusions: Patients are enthusiastic about electronic health information
exchange, recognizing its capacity to improve the quality and safety of health
care; however, they are also concerned about its potential to result in breached
privacy and misuse of health data. As the exchange of electronic health
information becomes more widespread, policy makers will need to ensure
that patients have access to concise educational materials and opportunities
to engage in conversations about the risks and benefits of participation.

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Application of systematic review methodology to the field of nutrition

Nutritional Research Series:
Advancing the Role of Evidence-based Reviews in Nutrition Research and
Applications
Volume 1: Application of Systematic Review Methodology to the Field of Nutrition

 

Agency for Healthcare Research and Quality

U.S. Department of Health and Human Services - AHRQ Publication No. 09-0025
January 2009

“…..Systematic reviews represent a rigorous and transparent approach of synthesizing
scientific evidence that minimizes bias. They evolved within the medical community to
support development of clinical and public health practice guidelines, set research
agendas and formulate scientific consensus statements. The use of systematic
reviews for nutrition related topics is more recent. Systematic reviews provide
independently-conducted comprehensive and objective assessments of available
information addressing precise questions. This approach to summarizing available
data is a useful tool for identifying the state of science including knowledge gaps and
associated research needs, supporting development of science-based
recommendations and guidelines, and serving as the foundation for updates as new
data emerge.

 

Our objective is to describe the steps for performing systematic reviews and highlight
areas unique to the discipline of nutrition important to consider in data assessment.
Steps involved in generating systematic reviews include identifying staffing and planning
for outside expert input, forming a research team, developing an analytic framework,
developing and refining research questions, defining eligibility criteria, identifying
search terms, screening abstracts according to eligibility criteria, retrieving articles for
evaluation, constructing evidence and summary tables, assessing methodological
quality and applicability, and synthesizing results including performing meta-analysis,
if appropriate.

 

Unique and at times challenging, nutrition related considerations include baseline
nutrient exposure, nutrient status, bioequivalence of bioactive compounds,
bioavailability, multiple and interrelated biological functions, undefined nature of
some interventions, and uncertainties in intake assessment. Systematic reviews are
a valuable and independent component to decision making processes by groups
responsible for developing science-based recommendations and policies….” 



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1st Latin American and Caribbean Conference on Global Health

Alliances for Global Health Education: Learning from South-South Collaboration

Hosted at: Instituto Nacional de Salud Pública (INSP)
Cuernavaca, Mexico   -  April 9 - 11, 2010



Website: <http://globalhealthedu.org/events/alliances/Pages/default.aspx>



November 1, 2009:
Deadline for all abstract submissions are 11:59 pm Eastern Time

The program analyzes the differences between South/South collaborations and
traditional North/South alliances, examines successes and obstacles to effective
functioning of these partnerships and culls lessons that can be learned and
adopted by the North.

 Awards 
Recognition for Global Health Activities & Scholarships Awarded for Leadership
and Excellence
<http://globalhealthedu.org/EVENTS/ALLIANCES/Pages/Awards.aspx>

Call for abstracts:
<http://globalhealthedu.org/events/alliances/Pages/CallForAbstracts.aspx>

Keynote Speaker: Paulo Buss, Oswaldo Cruz Foundation (Fiocruz)
Dr. Paulo Buss is President of the Oswaldo Cruz Foundation, Brazil's national
institute of health which provides community services throughout Brazil and
postgraduate medical training in public health.


Plenary Panels:

▪ Interdisciplinary Approaches to Global Health Education:
  Beyond the traditional medical model 

▪ Lessons Learned from A(H1N1) Virus 

▪ Role of Institutional Alliances in Advancing Global Health Education  

▪ Ethics and Equity Issues of Collaborations for Global Health

▪ Social Determinants of Health

▪ Global Health Diplomacy

An Exploration of Issues:: 

▪ International Agencies and Global Health Alliances

▪ Economic Crises and Health, Workforce Education

▪ Pros and Cons of Multicultural Collaborations

▪ Research and Residencies Abroad

▪ Interdisciplinary Approaches to Global Health

▪ Surgery in Global Health

▪ Regional Perspectives on Global Health Education 

▪ Chronic and Lifestyle Diseases

▪ Education and Human Resources Development 

▪ Nutrition and Malnutrition 

▪ Clinical Practice and Research in Global Health 

▪ Accidents, Violence and Trauma

▪ The Environment and Global Health 

▪ Student Experiences in Global Health

▪ Public Policies and Health 

▪ Aging as a Global Health Concern

▪ Access to Care 

▪ New Technologies in Global Health 


Invited Speakers Include: 

▪ Marco Akerman, Pan American Health Organization 
▪ Ilona Kickbusch, Graduate Inst. of Intl. Dev. Studies, Geneva
▪ Jack Bryant, World Health Organzation 
▪ Pablo Kuri, Mexico Secretariat of Health
▪ Pierre Buekens, Tulane University 
▪ Laura Magaña, Instituto de Salud 
▪ Paulo Buss, Oswaldo Cruz Foundation 
▪ Tom Novotny, San Diego State University
▪ Julio Frenk, Harvard University 
▪ Walter Patrick, South Asian Partners for Global Health
▪ Mauricio Hernandez, Mexico Ministry of Health 
▪ Mirta Roses, Pan American Health Organization
▪ King Holmes, University of Washington 
▪ Jeanette Vega, Undersecretary of Public Health, Chile 

Contact:
Global Health INSP Cuernavaca, Morelos MEXICO

Tel . (52-777) 329 3000 Ext. 5205 y 5206 Fax: (777) 311 1156 saludglobal@insp.mx 

Para solicitar mayor información en español:
Dra. Nelly Salgado de Snyder. Programa de Salud Global del INSP;
Teléfono +52 777 329-3000 ext 5205 y 5206.
Correo electrónico:   nsnyder@insp.mx

Arte, Medicina y Espiritualidad en la Selva Amazónica

¨El Arbol de La Vida¨